“To good science”
Enacting ethics in experimental stem cell transplantation of an HIV cure
DOI:
https://doi.org/10.47284/cdc.v24iesp.2.19021Keywords:
HIV, Cure, Medical ethics, Hematopoietic stem cell transplantation, Social Studies of Science and TechnologyAbstract
This paper aims to discuss, from a socio-anthropological perspective, the ethical complexities that interweave the first five cases of “cure” or “long-term remission” of HIV achieved through experimental stem cell transplants. Through the analysis of selected documents, I situate such technobiomedical practices in the context of “ethical sciences” and explore the different dimensions that define what is considered “good science” and “bad science.” I observe that the ethics of HIV cure is not a given phenomenon, as may be implied by ethical codes and regulatory institutions. Rather, it is a constantly evolving process that transcends clinical practice and is permeated by narrative, political, affective, and practical disputes. In this sense, I suggest that critically reflecting on "enacting ethics" in this and other experimental contexts can contribute to more democratic scientific practices.
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